Monday, April 12, 2010

Just Another Manic Monday

Manic means pertaining to or affected by mania...


Mania is a mood disorder which consists in a state of abnormally elevated or irritable mood, arousal, and/ or energy levels.


Seems like this describes a lot of us at various stages of life. Kevin may be experiencing some moods he's never experienced before. I know how many of you can relate to this feeling I'm having... the frustration that I just can't fix it and make things better. We have to resign ourselves that there is no normal right now and just go with the flow. Otherwise, we set ourselves up for disappointment when we don't get that INR number we want to see or when we don't hear that we can go home. As Laine put it... "we just can't see the light at the end of the tunnel". But we have to be ok with that and realize it's in God's hands. He has us where he wants us for now. We have gotten to meet so many people (patients and staff) and learn their stories. This gives us an opportunity to share what God has done and continues to do in our lives.


So as for Kevin's situation, they have decided to take him off of Coumadin all together. This is good and bad. It's good in that we don't have to monitor this INR number and as soon as it stabilizes we may get to leave. Please pray his INR number will be down tomorrow when they check it. We need it to be a 2 or a 2.5. It's bad in that we have to give him another blood thinner and this is the one that is administered by way of injection into his belly. This really hurts him and will have to happen twice a day. Now we'll have to decide who is ok with Kevin not liking them for awhile. Obviously this cannot be Laine and she couldn't handle giving injections anyway.


His Oxygen sats have been really high lately and we are thinking this is great. However, the surgeon says that they did not tie off his pulmonary artery completely and want to make sure that is not the issue... with too much flow going to his lungs. They will do another echo-cardiogram to make sure this is ok. Please pray it is. Otherwise, they may have to go back in to fix it.

Thank you all so much for your love and support and prayers!

27 comments:

The Princess's Mommy said...

Praying and praying and praying! Oh I wish I was there so I could give him the shots and neither of you would have to do it. Bless his little heart (and both of yours, too!)

We love you guys!
Monica

The Byrd's Nest said...

Oh we are praying.........we remain on our knees for your family.

Praying that an alternate person, maybe someone at church is a nurse, who could come by and give the injections and then he wouldn't be upset with his Daddy:(

I know this is so hard on all of you!

Our Journey to China said...

We are definitely praying! He is such a sweet soul and I know your hearts are hurting when he is hurting. We love you all and will certainly come down again when it works for everyone. If you need us for anything at all, please call! Love, Lee Ann and Chuck

Trace Car Driver said...

still praying. thanks so much for the updates so we know specifically how to pray! hang in there. sounds like ya'll have a great attitude. i know it's not always easy giving it over to god, but we do know it's all in his hands! praying for a smooth nite!
love ya'll!

smallseven said...

Praying, praying, praying!!!!!!
Ya'll are such a source of encouragement to so many of us to keep pressing on through life's trials trusting and believing our God is good, loving, mighty, and able to do all things!
love ya'll,
Heather
Ps: Praying GOd's peace and presence is all over those injections, and for those numbers to be what they should be!

Ashley said...

Praying. Sending love. Ashley

Rhonda Bryant said...

Dear Rob and Laine,
We are praying for this number to be right and you all maybe can go home. When you wrote "we cannot see the light at the end of this tunnel," we have been there. While the circumstances are different all the emotions are the same. When Bailee had her surgery and was in so much pain there was nothing we could do, everything was being done that could be. We truly thought we would never see normal again but we are seeing it, we are seeing the light and YOU WILL TOO!!!!! We Love ya'll and are lifting you up!!!!!

Stefanie said...

Oh my word. You guys are doing an amazing job just to keep your heads above water right now!!
Praying for you ALL, and especially that sweet boy of yours.
BIG HUGS!!

Sherri said...

Praying!

I wish I had something to say that would make you feel better....just know the Busks are praying.

The Collier Bunch said...

Praying throughout the day for all of you. Praying Kevin will stabilize and be able to go home very soon.

Aunt Pearl said...

'K...I think it's good that you can't see the light, 'cause aren't you supposed to go toward it when you do? NOT ready for that! Glad you're not throwing in the towel, although I'm sure you're ready to hold up a white flag in surrender. Trust that God will work everything out - yes, it can be frustrating 'cause it's always in His time and not ours. Praying for your precious family all the time! Love you all! Laura

living4him5 said...

On my knees praying for you all!

Much love,
Amy <><

MichelleQ said...

praying for low numbers! (and HIGH amounts of strength and patience for mom & dad!)

TanyaLea said...

Ohhhhh, the heaviness of this just breaks my heart. I care about your family SO much and it's so hard to hear of all that you are going through. Your attitudes and faith are extremely inspiring though, and I believe God will reward that and carry you through each stage of this process... delivering more miracles along the way. He will be glorified through this process, I know that for certain!

Hang in there and know that our thoughts and prayers are with your family and sweet little Kevin. I just want to reach through the screen and give him a cyber smootch!! (those cheeks of his are SO kissable!!) Give Laine a big ol' hug for me, too.

And I like what Kim Byrd said about praying for an alternate person (nurse friend or someone in the church) who can come by and administer the shots... that would be a blessing. We will pray that, too. And better yet, we will pray that this passes so that he won't need these shots long, and that there will be some LIGHT shining through leading to the end of the tunnel!

BIG HUGS to ALL of you! <><

Love,
Tanya

Aaron and Erica said...

Oh sweet friend...my heart hurts for you right now. I know it is so hard to be there day after day, without any idea of when you can go home. We are lifting you up before the throne and asking the Great Physician to heal Kevin's little body.

We love you so much!

Kristi said...

Kevin (and all of you for that matter) is in my thoughts and prayers constantly. In all the things I do on autopilot during the day I am offering prayers for him.
And I know how you must long for some normalcy. Today I spent much of the day with Darcy at Duke and a friend watched my other two. They napped immediately following pick up and then we went to our life group tonight, so I feel like I hardly spent time with them at all. And then I imagine how you must feel Laine, being where you want to be with Kevin, yet longing to spend quality time with your other kids too.
I wish there was something tangible we could do right now. In the meantime, we'll be praying...
Lots of love!

Steve and Jan said...

My heart is aching right along with yours. I know how helpless you must feel. But, maybe God has placed you in a position where you are forced to rely solely on your faith in Him. Maybe He has you right where He wants you (right where He wants all of us)...on our knees, at His feet.

I think He is the light at the end of that dark tunnel.

I love you guys and am praying for you. Trust in the Lord with all your heart!

Jan

mommyofmany said...

So appreciate the updates. Please let us know if we can do ANYTHING for your family. We're here. You know my crew would love to spend time with their cousins... and we know how to cook, too! :)

In the mean time, we're continuing to pray.

Love y'all...
Sandy

Trav said...

We join all these wonderful people who are praying. Keep the faith dear ones - our trust is in a Great and Powerful God! Hugs to all, Zoe & Trav

Tina said...

We are also remembering your sweet family in our prayers.
' If there is a way we can help please let us know...(maybe Bert do injections) just anything please don't hesitate to ask or let us know.

DiJo said...

Hi! Oh, I just wish I could give you a hug!!! I just visited another adoption friend who is also waiting upon the Lord's timing for her son's healing. I am including her blog here... Her John Asher has had major heart surgery in the last week and is experiencing some setbacks... They were in China when we were there to pick up Sienna...

I am lifting up both of your dear families!!!

Blessings,
Diana

Robyn's Blog
http://bealladoptionjourney.blogspot.com/

DiJo said...

P.S:
If we were close, I would offer up Sienna to give Kevin his injections.. I am not kidding about that! She is a professional!!!! :)

~Diana

CK said...

Prayers for Kevin's numbers to be stable at a normal level, release from the hospital, and a special someone to do those shots-if I were closer I would do them

Love to all of you!

Mom Of Many said...

Your Kevin is so precious and we are praying over here in Colorado....much love...xo

Stefanie said...

Update us on your sweet little guy when you have time... pretty please? :)
Praying!!

Aimee said...

Reading all of your updates and continuing to pray.

He is right there with you.

Keri Mason said...

Praying for yall...love you!